Using family narrative reports to identify practices for improving end-of-life care quality
- Giannitrapani, K. F., Yefimova, M., McCaa, M. D., Goebel, J. R., Kutney-Lee, A., Gray, C., Shreve, S. T., & Lorenz, K. A. (2022). Using family narrative reports to identify practices for improving end-of-life care quality. Journal of Pain and Symptom Management, 64(4), 349-358. https://doi.org/10.1016/j.jpainsymman.2022.06.017
- This study analyzed 1,800 narratives from family members of Veterans who received end-of-life care at a Veterans Health Administration (VHA) facility (e.g., hospice, nursing home). Researchers collected the narratives from open-ended responses on the Bereaved Family Survey (BFS), in which families offered suggestions for improving care. Qualitative narrative content analysis was used to identify actionable practices. The identified practices were then categorized into 5 domains related to the quality of palliative and end-of-life care.
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