Understanding deinstitutionalization: What families value and desire in the transition to community living

  • Jones, J. L., & Gallus, K. L. (2016). Understanding deinstitutionalization: What families value and desire in the transition to community living. Research and Practice for Persons with Severe Disabilities, 41 (2), 116-131. http://doi/10.1177/1540796916637050
  • Professionals and families experiencing the transition from institutionalization to community-living often face additional stress and challenges. This study explored family members of individuals with intellectual and developmental disabilities (IDD) experiences regarding this mandated transition. Findings revealed six common themes reflecting a desire to connect and engage with communities and professionals of IDD services and support, but that they experienced barriers to doing so.

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Research summaries convey terminology used by the scientists who authored the original research article; some terminology may not align with the federal government's mandated language for certain constructs.

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