Unmet needs for information and support among military caregivers
Rylee, T. L., Sarkar, S., Reed, S. C., Rafizadeh, E., & Bell, J. F. (2019). Unmet needs for information and support among military caregivers. Military Medicine, 184(11-12), e922-e928. https://doi.org/10.1093/milmed/usz109
Abstract Created by REACH:
Family members and friends providing care to current and former military service members (i.e., military caregivers) may face different challenges compared to those providing care for civilians (i.e., civilian caregivers). In this study, survey data from a random sample of 588 caregivers (military caregivers = 83) were examined to identify perceived unmet needs related to caregiving. The results suggest that caregivers feel the need for more information or assistance in several caregiving domains: keeping the care recipient safe, managing challenging behaviors, managing one’s own challenges and stress, and making end-of-life decisions. Findings suggest that civilians and military service members have different unmet needs and that military caregivers report greater needs for help or information for making end-of-life decisions.
Branch of Service:
Child of a service member or veteran
Parent of a service member or veteran
Spouse of service member or veteran
Adulthood (18 yrs & older)
Aged (65 yrs & older)
Middle age (40 - 64 yrs)
Thirties (30 - 39 yrs)
Young adulthood (18 - 29 yrs)
Rylee, Tina L., Sarkar, Sayantani, Reed, Sarah C., Rafizadeh, Elbina, Bell, Janice F.
Introduction: In the United States, there are 5.5 million military caregivers, deﬁned as family members, friends, or other acquaintances who provide essential care and support to current or former military service members. This study describes the prevalence and predictors of unmet information and support needs in this unique group of caregivers. Until recently, little research has focused on military caregivers. In 2014, a comprehensive RAND report underscored the speciﬁc challenges experienced by military caregivers including greater physical, ﬁnancial, and emotional strain when compared with civilian caregivers. Of note, compared to civilian caregivers, military caregivers provide care and support for care recipients who are more likely to have complex illness. While this recent research improved our understanding of the increased burden associated with military caregiving, it also identiﬁed gaps for future work, including the need for additional studies to better understand unmet information and support needs to inform future interventions. The current study was designed to address this gap. Materials and Methods: We examined data collected in the Caregiving in the U.S. Survey, a cross-sectional online survey ﬁelded in 2014, by the National Alliance for Caregiving and the American Association of Retired Persons (AARP) for primary caregivers who had been in the role for at least six months. Four outcomes representing unmet caregiver needs were examined measuring caregiver report of needing more help or information to: (1) keep the care recipient safe at home; (2) manage challenging behaviors such as wandering; (3) manage their own emotional and physical stress; and (4) make end-of-life decisions. Survey-weighted logistic regression was used to test associations between military caregiver status (military/ civilian) and unmet needs while controlling for key socio-demographic, caregiving and care recipient health variables, with nationally generalizable results. Results: Compared to their civilian counterparts, military caregivers had signiﬁcantly higher odds of reporting need for information or support to make end-of-life decisions (OR = 2.22; 95% CI: 1.24, 3.97; p = 0.01) and marginally higher odds of reporting need for more information or support to manage physical and emotional stress (OR = 1.64; 95% CI: 0.93, 2.88; p = 0.08). In contrast, military caregivers had signiﬁcantly lower odds of reporting need for more information or support to keep the care recipient safe compared to civilian caregivers (OR = 0.54; 95% CI: 0.30, 0.95; p = 0.03). Reports of unmet needs related to managing challenging behaviors were similar between military and civilian caregivers. Conclusions: Needs for information and support differ for civilian and military caregivers and may reﬂect direct or indirect impacts on caregivers arising from differences in TRICARE and Veterans Affairs health insurance coverage and related beneﬁts, services and systems or access to resources that address the unique needs of military populations. Future research is needed to better understand the unique concerns of military caregivers and inform interventions that support end-of-life care decision-making for military service members and their caregivers.
Oxford University Press
University of California, Davis, Betty Irene Moore School of Nursing, TLR
University of California, Davis, Betty Irene Moore School of Nursing, SS
University of California, Davis, Betty Irene Moore School of Nursing, SCR
University of California, Davis, Betty Irene Moore School of Nursing, ER
University of California, Davis, Betty Irene Moore School of Nursing, JFB
caregivers, end of life, stress, unmet needs
REACH Publication Type: